Just an update on the post chemo progress for my husband. The fatigue is very, very real. He is extremely tired, which is difficult for an active, energetic person like him. Today we had a follow up appointment at the Cancer Clinic with the radiology oncologist to see how he was faring after the radiation for his bone cancer. She was very pleased with his vitals, his blood pressure, hydration, heart beat, temperature, weight and overall appearance were deemed to be more than satisfactory at this time. We were dreading this appointment since it was to determine if more radiation is required. So it was great news when we were told that unless something changes, such as a the development of a new pain or a significant amount of blood in the phlegm, the radiologist now considered my husband to be under the care of the medical oncologist for treatment of the lung cancer.
This was awesome news, so we decided to go someplace for a lunch out even though he is at a low level with respect to his immune system. We opted for a nice outdoor café which was relatively empty (sanitized everything in sight with the wet wipes I carry) and settled in for a lovely meal on the patio. This completely tuckered him out, but it is a very contented man having a nap right now. There is no news like good news. Next week we are back at the hospital for the second round of chemotherapy. At least he has one round under his belt and now knows what to expect for the second one.
So got the call first thing this morning and the apology. Don’t know what happened, made a mistake, sorry. Thing is, a mistake for someone who is gravely ill can really be quite traumatic. To have to travel a distance for a mistake is simply not acceptable. Either way though they have you, we need the service, and they provide it. Being miserable to the service providers accomplishes nothing and actually can make things more difficult. So we take the high road. Anyway, we had our appointment, learned a little bit more about chemo and the treatment and were instructed to go back down tomorrow to the hospital to have the picc line installed. No problem.
In the meantime we are expecting the delivery of mechanical supports, specifically a tripod for above the bed to help my husband move around, a walker for obvious reasons, some toileting accessories and a ramp for the house. The delivery was scheduled for either last Friday or today. When we followed up, guess what, someone forgot to put in the order for the equipment. I can’t believe this stuff keeps happening to us. Are we a test run for tolerance? Again, what do you do – answer: nothing, say no problem just please get it here as soon as possible.
Learning from all of the above, mistakes happen for sure, but following up is essential. If I hadn’t called about the equipment today who knows when it would have arrived. Actually, who knows when it will arrive – because it still isn’t here.
I can hardly wait for tomorrow (sigh).