All We Want Is One Good Day

What we wouldn’t give for a day where nothing, I mean, nothing happens.  Where there are no nurses, no health issues, no phone calls and no news that relates to cancer.  Just a normal day like normal people have.

Needless to say, the clot continues to dictate how the day goes.  His leg is still swollen and painful when he tries to put any weight on it.  Despite that we did a bit of walk outside using his rollator.  It came at a cost as he felt quite ill from the exertion, but the nausea passed and it was a small victory for him to be able to get out and about.  It is also important to start to resume some physical activity, so baby steps.

The day was also quite busy.  We had the visiting nurse come over to do a check in and to flush his picc line (which happens every week); this visit took 45 minutes to an hour.  Then we had a home visit from a dietician who has been assigned our file.  She’s been trying to get by for a visit for some time and I kept putting her off.  She has to do her job and I get that – she has been assigned our file so she needs to have a consult with us. So that took almost an hour.  Unfortunately, most of the questions I had for her she couldn’t answer.  But she’ll get back to me.  Then we had a call from the Oncology Department asking for an update on his physical state – had it improved over the last couple of days; another 15 minutes gone.  In amongst all of this we have a bunch of friends and family stopping just to catch up – and it can be quite hard to switch hats, so to speak, to put thoughts of cancer on the backburner.

Anyway the day is nearing its end, I don’t know where it went, but it’s almost 10 o’clock at night. Tomorrow we have absolutely nothing formal planned, but l’ve found life is seldom predictable.

Any thoughts or experiences to share? Leave them here.

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